#OpenDataSavesLives

During the summer of 2019, the team at ODI Leeds spent some time thinking about an open strategy for the future. Over the previous 5 years, ODI Leeds worked on a multitude of projects across various sectors, including transport, the environment, education, Internet-Of-Things, and health. Certain themes would appear time and again, so these became the foundation for thinking about the future focus of ODI Leeds. One of those themes became #OpenGovTech (launched in September 2019).
#OpenDataSavesLives is another theme that frequently appeared across the projects at ODI Leeds. As part of the future strategy, we wanted to use radical collaboration methods and an open approach to innovation within health and social care (and related sectors and communities) that could create a surplus of value that anyone could access.
In a similar sentiment to #OpenGovTech, we don't want to 'own' #OpenDataSavesLives. It isn't something that anyone should own. It is something that everyone can and should participate in, with no barriers to access. So how are we going to do that? What can we do about it?
It begins with two innovation sessions in January 2020 to start the conversations, find the like-minded folk, and create the environment that enables #RadicallyOpen innovation.
#OpenDataSavesLives COVID-19
26 March 2020
Our response to the COVID-19 pandemic.
#OpenDataSavesLives Launch - Bradford
23 January 2020
Innovation session at Kala Sangam Arts Centre.Bradford Launch - Notes
An open Google Doc to capture notes, photos, feedback, and ideas from the Bradford launch session
#OpenDataSavesLives Launch - Leeds
24 January 2020
Innovation session at ODI Leeds.Leeds Launch - Notes
An open Google Doc to capture notes, photos, feedback, and ideas from the Leeds launch session
ODI Leeds projects
SynAE
Exploring the possible methods of creating synthetic A&E data.
New Knowledge
Discovering new ways of looking at NHS survey data.
Open Data Tips
Tips and guidance on publishing and sharing open data.
Blog posts
An open data strategy that improves health
Anonimisation and re-identification
Exploring methods for synthetic A&E data
Releasing synthetic A&E data
Being radically open with NHS Digital
Learning from experience data with the NHS
Other resources
OneLondon
A large public engagement project, asking Londoners about their choice of health and care data.
The Data Spectrum
The Open Data Institute have published a 'data spectrum' with guidance on where different data exists on the spectrum.
Understanding Patient Data
Lots of helpful tips and guidance, including around anonymisation.